Dr Alison Killen, Research Associate and PPIE Researcher at the NIHR Newcastle BRC, and Dr Marie Poole, Senior Research Associate at Newcastle University and NIHR Applied Research Collaboration (ARC) for the North East and North Cumbria (NENC) welcomed representatives from the Foundation of Light in Sunderland, Carlisle United Community Sports Trust, Newcastle United, Newcastle United Foundation and Middlesbrough Football Club Foundation.
Football club–led dementia programmes have become an increasingly important part of community support for people living with dementia and their families. They offer belonging, connection, identity, and joy. Each club shared their work and dementia inclusive programmes as well as best practice with each other showcasing the growing role football can play in wellbeing, memory, and community connection.
Marie stepped into conversation with Pete, who shared his story about the importance of football in his life, especially after being diagnosed with dementia. Whilst he still enjoys watching live football matches, he also faces a lot of challenges in the stadiums. Sharing his lived experience with the club representatives of the North East region gave a unique insight into the reality of matches for people living with dementia. They listened carefully and took note for improvements to better support people with dementia. The conversation continued with Alison and members of the NUFC Foundation walking football and NUFC memory café members and their families, offering further lived experience insight and practical reflections on the benefits of attending the sessions.
The afternoon opened with a Love to Move session led by Trudy Carruthers. This chair-based movement to music programme, designed by the British Gymnastics Foundation, promotes co-ordination, cognitive stimulation, and reminiscence through music. As well as bringing plenty of enjoyment to the room, Trudy’s session clearly highlighted the benefits of structured gentle movement in an inclusive setting.
Marie and Alison then shared a brief summary of the football focussed research they are involved in. This was followed by small-group conversations exploring what contributes to a positive session for people living with dementia, the potential challenges of setting up and delivering these sessions, and any changes participants might make to their own services as a result of the event.
The day concluded with a strong commitment to closer collaboration between clubs and a shared hope that another forum will be arranged in the future.