Event Details
Embedding the patient voice into research projects: lessons and recommendations for meaningful patient and public involvement
Download the venue map
How to book: Reserve your place
This seminar is hosted by the team from the Digital Health, Ageing Innovation and Inclusion theme at the NIHR Newcastle Biomedical Research Centre in collaboration with the IMI-funded Mobilise-D consortium.
This talk will outline the importance of patient and public involvement and engagement (PPIE) in health research projects and considers how it can be done in a meaningful manner.
Mobilise-D is an IMI-funded project that is seeking to develop digital mobility outcomes of real-world walking across four diverse patient cohorts. Integrating the patient voice in this complex project came with a lot of challenges which are important to recognise for others looking to conduct similar work.
The processes used to develop functional PPIE structures will be discussed, along with the impact that PPIE work has had on the work of the consortium. Finally, the lessons learned and recommendations from this work will be outlined for future projects.
Alison is an Assistant Professor in Healthcare Innovation in Trinity College Dublin. Coming from a background of physiotherapy her research interests involve understanding the patient and clinicians perspectives of digital health development.
This includes usability of devices, design of tools, testing them in real-world context and exploring the unmet needs and lived experiences of people in order to help map these to future tools. Alison is the Patient and Public Involvement Engagement lead of a large European consortium, Mobilise-D, and she is a member of the Patient and Public Involvement working group of the Irish Platform for Patient Organisations, Science and Industry.
Find out more about our Digital Health, Ageing Innovation and Inclusion theme