Aye Myat Moe

NIHR Newcastle BRC PhD Student

Aye's background is in Clinical Neurology. She is a registered neurology trainee in Northern Deanery. She moved to UK from Myanmar in 2012 after obtaining M., B,B, S degree and joined the internal medical training programme. She joined higher specialist training programme in Neurology in 2019 after completing MRCP exams. She is currently working as a research associate, while pursuing a doctoral degree and developing her subspecialty interest in Mitochondrial and Neuro-genetic conditions. Her PhD research investigates the clinical manifestations of brain involvement in primary mitochondrial diseases, focusing on how these conditions affect daily living. Her research aims to understand the full range of these clinical manifestations, highlighting thechallenges that individuals with mitochondrial diseases face in managing both motor and cognitive functions in daily life. Aye's long-term career goal is to become an established clinical academic neurologist with expertise in Mitochondrial and Neurogenetic diseases who can make contributions to the research community in these areas. 

 

PhD Project

Assessment of Neurodegeneration and Exploring Outcome Measures in Primary Mitochondrial Disease (PMD) and Hereditary Ataxias

 

Conferences

  • British Myology Society Annual Meeting (11th -12th September, 2023) – Platform presentation : Late-Onset Pompe Disease, Oxford
  • UK World Congress Neurology 2023 (15th – 19th October, 2023) – Poster presentation: Review of Mortality data in Mitochondrial Diseases over 12 years , Montreal, Canada
  • Jacobson Lectureship 2023 (2nd November, 2023 )- Case presentation : two siblings with striatal necrosis and cerebellar lesions, Newcastle-Upon-Tyne, UK
  • Irish Neurological Association, 2024 (2nd -3rd May, 2024) – Oral platform presentation: Mortality in Primary Mitochondrial Diseases, Kilkenny, Ireland
  • Association of British Neurologists Annual Meeting 2024 ( 21st-23rd May,2024) – Oral platform presentation : Dorsal Root Ganglionopathy in POLG-related mitochondrial disease, a case series, Edinburgh, UK
  • 10th Congress of the European Academy of Neurology (29th June -2nd July, 2024) – Electronic presentation: Evaluating Outcome Measures in Ataxia in Primary Mitochondrial Disease and Spinocerebellar Ataxia Type 6, Helsinki, Finland
  • International Congress for Ataxia Congress(12th -15th November,2024) –Poster presentation : R-PROMS study preliminary findings, London, UK

 

Publications

Ivaniuk, Alina et al. “Characterization of Factors Associated With Death in Deceased Patients With Mitochondrial Disorders: A Multicenter Cross-Sectional Survey.” Neurology vol. 104,4 (2025): e209779.

 

Awards and Nominations

  • Mito-Incubator Grant for Cogstate Study (Co-applicant) awarded by Mito Foundation, Australia (A$ 23,428/£11,909)
  • Small Grant application for extension of the R-PROMS study (Co-applicant) awarded by Ataxia UK (£4,998)
  • Brain Travel Grant (£400)
  • ProNE (Postgraduate research opportunities North East) Project: Conference funding for PGR students (£250)

 

Other

World Mitochondrial Disease Week in September 2023 – Participated in organising tennis rally event BRC (Biomedical Research Centre) celebration event (13th March 2024) – presented on behalf of the Mitochondrial team on current projects Committee member for Patient Information Day 2025 for Primary Mitochondrial Disease