Principal Investigator: Robert Muni-Lofra

Neuromuscular diseases are a group of genetic conditions characterised by progressive muscle weakness. Many people with neuromuscular disease experience weakness around their hips and pelvis, the severity and impact of which varies from person to person, with very limited treatments available.

This study looks at whether a new wearable device that provides support around the hips and pelvis has an effect on tiredness, daily activities and walking. In the course of a day, patients will carry out assessments based on walking and daily activities. They will be asked about their quality of life and their views on the treatment. We hope this treatment will improve walking ability, daily activities and levels of tiredness in patients with neuromuscular diseases.